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Links to other resources for head and neck cancer patients and their families and friends

Information Provided by Medical Professionals

• MedlinePlus section on Head and Neck Cancer
  A comprehensive clearing house of information on Head and Neck Cancer; a service of the U.S. National Library of Medicine and the National Institutes of Health.
• PLWC (People living with Cancer) section on Head and Neck Cancer
  A comprehensive clearing house of information on Head and Neck Cancer; a service of ASCO (the American Society of Clinical Oncologists).  
• NCI CancerNet
  National Cancer Institute site focusing on Head and Neck Cancer. An abundance of information about statistics, treatments, and much more.
• Cancer Supportive Care section on Treatment Side Effects
  Definitions and explanations of many treatment side effects such as oral mucositis, candidiasis, osteoradionecrosis, changes to salivary function, etc. The entire site has lots of helpful information.

Information from Researchers about Clinical Trials

• Collaborative Study of Head and Neck Diseases at Harvard School of Public Health
• PDQ® CancerNet
  The NCI's database of clinical trials.
• NCI Cancer Research Portfolio
  The section regarding Head and Neck Cancer research projects can be reached if you select "Head and Neck Cancer" from the pull-down menu.

Patients and Families Share Support & Stories

• Livestrong section on Head and Neck Cancer
  Lance Armstrong's foundation, a wealth of resources, focuses on issues of survivorship. The section about survivorship stories is very moving and inspiring.
• A Head and Neck Cancer Patient's Story
  A profile of a Dana-Farber Head and Neck patient.
• WebWhispers.org: Dedicated to Laryngectomy Rehabilitation
  Includes an extensive list of vendors who supply products for people who have had laryngectomies.
• Cancer Patient Forum
  A forum run by a Dana-Farber patient to provide support for others going through a similar experience.
• Head and Neck Cancer On-Line Support (Listserv - registration required)
• Support for People with Oral and Head and Neck Cancer, Inc.
  SPOHNC is a patient-directed, self-help organization dedicated to meeting the needs of oral and head and neck cancer patients.
• Mom's Cancer
  A story from the son of a cancer patient told in graphical form; a poignant portrayal of the treatment experience and its effect on the patients' family.

Activist Organizations

• Adenoid Cystic Carcinoma Resource Center
  Hosted by the political lobbyist group NORD (The National Organization for Rare Disorders), a non-profit, voluntary health agency that exists to serve rare-disease patients and their families.