Photo of James A. Tulsky, MD

James A. Tulsky, MD

Dana-Farber Cancer Institute

Dana-Farber Cancer Institute
Phone: (617) 582-9201
Fax: (617) 632-6180


jamesa_tulsky@dfci.harvard.edu

Photo of James A. Tulsky, MD

Dana-Farber Cancer Institute
Phone: (617) 582-9201
Fax: (617) 632-6180


jamesa_tulsky@dfci.harvard.edu

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James A. Tulsky, MD

Dana-Farber Cancer Institute

EDUCATIONAL TITLES

  • Professor, Medicine, Harvard Medical School
  • Poorvu Jaffe Chair, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute
  • Chief, Division of Palliative Medicine, Medicine, Brigham And Women's Hospital

DF/HCC PROGRAM AFFILIATION

DF/HCC ASSOCIATIONS

  • Member, Center Scientific Council

Research Abstract

Dr. Tulsky has a longstanding interest in doctor-patient communication and quality of life at the end of life, and has published widely in these areas. His current research focuses on the evaluation and enhancement of communication between oncologists and patients with advanced cancer, identification of clinical, psychosocial and spiritual trajectories of patients at the end of life, development of self-management interventions for patients with life-limiting illness, and evaluating the role of palliative care in congestive heart failure.

Publications from Harvard Catalyst Profiles

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  • Tarbi EC, Durieux BN, Brain JM, Kwok A, Umeton R, Samineni S, Tulsky JA, Lindvall C. Measuring Palliative Care Communication via Telehealth: A Pilot Study. J Pain Symptom Manage 2023; 66:e155-e161. PubMed
  • Loggers ET, Case AA, Chwistek M, Dale W, Delgado Guay MO, Edge SB, Grossman SR, Gustin J, Nelson J, Rajasekhara S, Reddy A, Tulsky JA, Zachariah F, Landrum KM. ADCC's Improving Goal Concordant Care Initiative: Implementing Primary Palliative Care Principles. J Pain Symptom Manage 2023. PubMed
  • Aslakson RA, Rickerson E, Fahy B, Waterman B, Siden R, Colborn K, Smith S, Verano M, Lira I, Hollahan C, Siddiqi A, Johnson K, Chandrashekaran S, Harris E, Nudotor R, Baker J, Heidari SN, Poultsides G, Conca-Cheng AM, Cook Chapman A, Lessios AS, Holdsworth LM, Gustin J, Ejaz A, Pawlik T, Miller J, Morris AM, Tulsky JA, Lorenz K, Temel JS, Smith TJ, Johnston F. Effect of Perioperative Palliative Care on Health-Related Quality of Life Among Patients Undergoing Surgery for Cancer: A Randomized Clinical Trial. JAMA Netw Open 2023; 6:e2314660. PubMed
  • Yusufov M, McHugh RK, Greer JA, Dalrymple K, Sannes T, Braun IM, Tulsky J, Pirl W. An acceptance and commitment therapy-based intervention for opioid use disorder risk in individuals with cancer: A treatment development study. J Contextual Behav Sci 2023; 28:226-234. PubMed
  • Durieux BN, Zverev SR, Tarbi EC, Kwok A, Sciacca K, Pollak KI, Tulsky JA, Lindvall C. Development of a keyword library for capturing PRO-CTCAE-focused "symptom talk" in oncology conversations. JAMIA Open 2023; 6:ooad009. PubMed
  • Leiter RE, Bischoff KE, Carey EC, Gelfand SL, Iyer AS, Jain N, Kramer NM, Lally K, Landzberg MJ, Lever N, Newport K, O'Donnell A, Patel A, Sciacca KR, Snaman JM, Tulsky JA, Rosa WE, Lakin JR. Top Ten Tips Palliative Care Clinicians Should Know About Delivering Specialty-Aligned Palliative Care. J Palliat Med 2023. PubMed
  • Azizoddin DR, Wilson JM, Flowers KM, Beck M, Chai P, Enzinger AC, Edwards R, Miaskowski C, Tulsky JA, Schreiber KL. Daily pain and opioid administration in hospitalized patients with cancer: the importance of psychological factors, recent surgery, and current opioid use. Pain 2023. PubMed
  • Ouchi K, Joshi C, Kaithamattam J, Gale SA, Marshall GA, Pietras A, Wang W, Boyer EW, Tulsky JA, Block SD, Rentz D, Schonberg MA. Refinement of an emergency department-based, advance care planning intervention for patients with cognitive impairment and their caregivers. Gerontologist 2023. PubMed
  • Pozzar RA, Xiong N, Mazzola E, Wright AA, Goff BA, Tulsky JA, Hammer MJ, Berry DL. Health-related quality of life, patient-centred communication and self-efficacy in ovarian cancer: a mediation analysis. BMJ Support Palliat Care 2022. PubMed
  • Prachanukool T, Aaronson EL, Lakin JR, Higuchi M, Lee RS, Santangelo I, Hasdianda MA, Wang W, George N, Liu SW, Kennedy M, Schonberg MA, Block SD, Tulsky JA, Ouchi K. Communication Training and Code Status Conversation Patterns Reported by Emergency Clinicians. J Pain Symptom Manage 2022. PubMed
  • Prachanukool T, Block SD, Berry D, Lee RS, Rossmassler S, Hasdianda MA, Wang W, Sudore R, Schonberg MA, Tulsky JA, Ouchi K. Emergency department-based, nurse-initiated, serious illness conversation intervention for older adults: a protocol for a randomized controlled trial. Trials 2022; 23:866. PubMed
  • Pozzar RA, Xiong N, Hong F, Wright AA, Goff BA, Underhill-Blazey ML, Tulsky JA, Hammer MJ, Berry DL. How does patient-centered communication in ovarian cancer care enhance patient well-being? A mixed methods study. Gynecol Oncol 2022. PubMed
  • Braun IM, Nayak MM, Roberts JE, Chai PR, Tulsky JA, Abrams DI, Pirl W. Backgrounds and Trainings in Cannabis Therapeutics of Dispensary Personnel. JCO Oncol Pract 2022. PubMed
  • Gray TF, Kwok A, Do KM, Zeng S, Moseley ET, Dbeis YM, Umeton R, Tulsky JA, El-Jawahri A, Lindvall C. Associations Between Family Member Involvement and Outcomes of Patients Admitted to the Intensive Care Unit: Retrospective Cohort Study. JMIR Med Inform 2022; 10:e33921. PubMed
  • Tung SC, Nayak MM, Chai PR, Tulsky J, Sannes TS, Yusufov M, Braun IM. Cancer Patients' Experiences with and Perspectives on the Medicinal Cannabis "High". J Palliat Med 2022. PubMed
  • Lindvall C, Deng CY, Agaronnik ND, Kwok A, Samineni S, Umeton R, Mackie-Jenkins W, Kehl KL, Tulsky JA, Enzinger AC. Deep Learning for Cancer Symptoms Monitoring on the Basis of Electronic Health Record Unstructured Clinical Notes. JCO Clin Cancer Inform 2022; 6:e2100136. PubMed
  • Tarbi EC, Blanch-Hartigan D, van Vliet LM, Gramling R, Tulsky JA, Sanders JJ. Toward a basic science of communication in serious illness. Patient Educ Couns 2022. PubMed
  • Durieux BN, Berrier A, Catzen HZ, Gray TF, Lakin JR, Cunningham R, Morris SE, Tulsky JA, Sanders JJ. ": Qualitative interviews with bereaved caregivers reveal complexity in measuring goal-concordant care at the end of life. Palliat Med 2022; 36:742-750. PubMed
  • Volandes AE, Zupanc SN, Paasche-Orlow MK, Lakin JR, Chang Y, Burns EA, LaVine NA, Carney MT, Martins-Welch D, Emmert K, Itty JE, Moseley ET, Davis AD, El-Jawahri A, Gundersen DA, Fix GM, Yacoub AM, Schwartz P, Gabry-Kalikow S, Garde C, Fischer J, Henault L, Burgess L, Goldman J, Kwok A, Singh N, Alvarez Suarez AL, Gromova V, Jacome S, Tulsky JA, Lindvall C. Association of an Advance Care Planning Video and Communication Intervention With Documentation of Advance Care Planning Among Older Adults: A Nonrandomized Controlled Trial. JAMA Netw Open 2022; 5:e220354. PubMed
  • Wasp GT, Knutzen KE, Murray GF, Brody-Bizar OC, Liu MA, Pollak KI, Tulsky JA, Schenker Y, Barnato AE. Systemic Therapy Decision Making in Advanced Cancer: A Qualitative Analysis of Patient-Oncologist Encounters. JCO Oncol Pract 2021. PubMed
  • Jia Z, Yeh IM, Lee CH, Yeung AS, Tulsky JA, Leiter RE. Barriers and Facilitators to Advance Care Planning among Chinese Patients with Advanced Cancer and Their Caregivers. J Palliat Med 2021. PubMed
  • Pozzar RA, Xiong N, Hong F, Wright AA, Goff BA, Underhill-Blazey ML, Tulsky JA, Hammer MJ, Berry DL. Perceived patient-centered communication, quality of life, and symptom burden in individuals with ovarian cancer. Gynecol Oncol 2021; 163:408-418. PubMed
  • Tulsky JA, Steinhauser KE, LeBlanc TW, Bloom N, Lyna PR, Riley J, Pollak KI. Triadic agreement about advanced cancer treatment decisions: Perceptions among patients, families, and oncologists. Patient Educ Couns 2021. PubMed
  • Lindvall C, Deng CY, Moseley E, Agaronnik N, El-Jawahri A, Paasche-Orlow MK, Lakin JR, Volandes A, Tulsky TAIJA. Natural Language Processing to Identify Advance Care Planning Documentation in a Multisite Pragmatic Clinical Trial. J Pain Symptom Manage 2021. PubMed
  • Azizoddin DR, Schreiber K, Beck MR, Enzinger AC, Hruschak V, Darnall BD, Edwards RR, Allsop MJ, Tulsky JA, Boyer E, Mackey S. Chronic pain severity, impact, and opioid use among patients with cancer: An analysis of biopsychosocial factors using the CHOIR learning health care system. Cancer 2021. PubMed
  • Knutzen KE, Sacks OA, Brody-Bizar OC, Murray GF, Jain RH, Holdcroft LA, Alam SS, Liu MA, Pollak KI, Tulsky JA, Barnato AE. Actual and Missed Opportunities for End-of-Life Care Discussions With Oncology Patients: A Qualitative Study. JAMA Netw Open 2021; 4:e2113193. PubMed
  • Sanders JJ, Caponigro E, Ericson JD, Dubey M, Duane JN, Orr SP, Pirl W, Tulsky JA, Blanch-Hartigan D. Virtual environments to study emotional responses to clinical communication: A scoping review. Patient Educ Couns 2021. PubMed
  • Azizoddin DR, Knoerl R, Adam R, Kessler D, Tulsky JA, Edwards RR, Enzinger AC. Cancer pain self-management in the context of a national opioid epidemic: Experiences of patients with advanced cancer using opioids. Cancer 2021. PubMed
  • Huang K, Gray TF, Romero-Brufau S, Tulsky JA, Lindvall C. Using nursing notes to improve clinical outcome prediction in intensive care patients: A retrospective cohort study. J Am Med Inform Assoc 2021. PubMed
  • Lakin JR, Gundersen DA, Lindvall C, Paasche-Orlow MK, Tulsky JA, Brannen EN, Pollak KI, Kennedy D, McLeggon JA, Stout JJ, Volandes A, . A Yet Unrealized Promise: Structured Advance Care Planning Elements in the Electronic Health Record. J Palliat Med 2021. PubMed
  • Feraco AM, McCarthy SR, Revette AC, Stevens SE, Das PJ, Al-Sayegh H, Ma C, Tulsky JA, Wolfe J. Feasibility and acceptability of the "Day 100 Talk": An interdisciplinary communication intervention during the first six months of childhood cancer treatment. Cancer 2020. PubMed
  • Reese JB, Sorice KA, Pollard W, Handorf E, Beach MC, Daly MB, Porter LS, Tulsky JA, Lepore SJ. Efficacy of a multimedia intervention in facilitating breast cancer patients' clinical communication about sexual health: Results of a randomized controlled trial. 2020. PubMed
  • Rosenberg LB, Goodlev ER, Izen RSE, Gelfand SL, Goodlev CL, Lanckton RB, Skarf LM, Wershof Schwartz A, Jones CA, Tulsky JA. Top Ten Tips Palliative Care Clinicians Should Know About Caring for Jewish Patients. J Palliat Med 2020; 23:1658-1661. PubMed
  • Snaman JM, Helton G, Holder RL, Wittenberg E, Revette A, Tulsky JA, Baker JN, Wolfe J. MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer. Support Care Cancer 2020. PubMed
  • Jia Z, Leiter RE, Yeh IM, Tulsky JA, Sanders JJ. Toward Culturally Tailored Advance Care Planning for the Chinese Diaspora: An Integrative Systematic Review. J Palliat Med 2020. PubMed
  • Braun IM, Nayak MM, Revette A, Wright AA, Chai PR, Yusufov M, Pirl WF, Tulsky JA. Cancer patients' experiences with medicinal cannabis-related care. Cancer 2020. PubMed
  • Pajka SE, Hasdianda MA, George N, Sudore R, Schonberg MA, Bernstein E, Tulsky JA, Block SD, Ouchi K. Feasibility of a Brief Intervention to Facilitate Advance Care Planning Conversations for Patients with Life-Limiting Illness in the Emergency Department. J Palliat Med 2020. PubMed
  • Petersen A, Tulsky JA, Mendu M. CODE: a practical framework for advancing patient-centred code status discussions. BMJ Qual Saf 2020. PubMed
  • Back A, Tulsky JA, Arnold RM. Communication Skills in the Age of COVID-19. Ann Intern Med 2020. PubMed
  • Beaussant Y, Sanders J, Sager Z, Tulsky JA, Braun IM, Blinderman CD, Bossis AP, Byock I. Defining the Roles and Research Priorities for Psychedelic-Assisted Therapies in Patients with Serious Illness: Expert Clinicians' and Investigators' Perspectives. J Palliat Med 2020. PubMed
  • Mehanna EK, Catalano PJ, Cagney DN, Haas-Kogan DA, Alexander BM, Tulsky JA, Aizer AA. Hospice utilization in elderly patients with brain metastases. Journal of the National Cancer Institute 2020. PubMed
  • Henckel C, Revette A, Huntington SF, Tulsky JA, Abel GA, Odejide OO. Perspectives Regarding Hospice Services and Transfusion Access: Focus Groups With Blood Cancer Patients and Bereaved Caregivers. J Pain Symptom Manage 2020. PubMed
  • Azizoddin DR, Enzinger AC, Wright AA, Yusufov M, Tulsky JA, Campbell EG, Bolcic-Jankovic D, Nayak MM, Braun IM. Oncologists' perspectives on medical marijuana use by older adults. 2020. PubMed
  • Lakin JR, Brannen EN, Tulsky JA, Paasche-Orlow MK, Lindvall C, Chang Y, Gundersen DA, El-Jawahri A, Volandes A, . Advance Care Planning: Promoting Effective and Aligned Communication in the Elderly (ACP-PEACE): the study protocol for a pragmatic stepped-wedge trial of older patients with cancer. BMJ Open 2020; 10:e040999. PubMed
  • Steinhauser KE, Stechuchak KM, Ramos K, Winger J, Tulsky JA, Olsen MK. Current measures of distress may not account for what's most important in existential care interventions: Results of the outlook trial. 2020; 18:648-657. PubMed
  • Pozzar R, Hammer MJ, Underhill-Blazey M, Wright AA, Tulsky JA, Hong F, Gundersen DA, Berry DL. Threats of Bots and Other Bad Actors to Data Quality Following Research Participant Recruitment Through Social Media: Cross-Sectional Questionnaire. J Med Internet Res 2020; 22:e23021. PubMed
  • Malhotra C, Rajasekaran T, Kanesvaran R, Yee A, Bundoc FG, Singh R, Tulsky JA, Pollak KI. Pilot Trial of a Combined Oncologist-Patient-Caregiver Communication Intervention in Singapore. J Oncol Pract 2019. PubMed
  • Brannen EN, Pollak KI, Farrell D, Baranowski RA, Arnold GK, Rohowyj N, Goldman JL, Tulsky JA. When worlds collide: Challenges to implementing communication research in community oncology practices. Patient Educ Couns 2019. PubMed
  • Brizzi K, Zupanc SN, Udelsman BV, Tulsky JA, Wright AA, Poort H, Lindvall C. Natural Language Processing to Assess Palliative Care and End-of-Life Process Measures in Patients With Breast Cancer With Leptomeningeal Disease. Am J Hosp Palliat Care 2019. PubMed
  • Malhotra C, Kanesvaran R, Barr Kumarakulasinghe N, Tan SH, Xiang L, Tulsky JA, Pollak KI. Oncologist-patient-caregiver decision-making discussions in the context of advanced cancer in an Asian setting. Health Expect 2019. PubMed
  • Odejide OO, Uno H, Murillo A, Tulsky JA, Abel GA. Goals of care discussions for patients with blood cancers: Association of person, place, and time with end-of-life care utilization. Cancer 2019. PubMed
  • Sanders JJ, Berrier AI, Nshuti L, Tulsky JA, Lindvall C. Differences by Race, Religiosity, and Mental Health in Preferences for Life-Prolonging Treatment Among Medicare Beneficiaries. J Gen Intern Med 2019. PubMed
  • Reese JB, Lepore SJ, Daly MB, Handorf E, Sorice KA, Porter LS, Tulsky JA, Beach MC. A brief intervention to enhance breast cancer clinicians' communication about sexual health: Feasibility, acceptability, and preliminary outcomes. 2019; 28:872-879. PubMed
  • Chua IS, Leiter RE, Brizzi KT, Coey CA, Mazzola E, Tulsky JA, Lindvall C. US National Trends in Opioid-Related Hospitalizations Among Patients With Cancer. JAMA Oncol 2019. PubMed
  • Habib AR, Cronin AM, Earle CC, Tulsky JA, Mack JW, Abel GA, Odejide OO. How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med 2019. PubMed
  • Ouchi K, George N, Schuur JD, Aaronson EL, Lindvall C, Bernstein E, Sudore RL, Schonberg MA, Block SD, Tulsky JA. Goals-of-Care Conversations for Older Adults With Serious Illness in the Emergency Department: Challenges and Opportunities. Ann Emerg Med 2019. PubMed
  • Hu SY, Santus E, Forsyth AW, Malhotra D, Haimson J, Chatterjee NA, Kramer DB, Barzilay R, Tulsky JA, Lindvall C. Can machine learning improve patient selection for cardiac resynchronization therapy? PLoS ONE 2019; 14:e0222397. PubMed
  • Chan A, Chien I, Moseley E, Salman S, Kaminer Bourland S, Lamas D, Walling AM, Tulsky JA, Lindvall C. Deep learning algorithms to identify documentation of serious illness conversations during intensive care unit admissions. Palliat Med 2018. PubMed
  • Ouchi K, George N, Revette AC, Hasdianda MA, Fellion L, Reust A, Powell LH, Sudore R, Schuur JD, Schonberg MA, Bernstein E, Tulsky JA, Block SD. Empower Seriously Ill Older Adults to Formulate Their Goals for Medical Care in the Emergency Department. J Palliat Med 2018. PubMed
  • Lindvall C, Lilley EJ, Zupanc SN, Chien I, Udelsman BV, Walling A, Cooper Z, Tulsky JA. Natural Language Processing to Assess End-of-Life Quality Indicators in Cancer Patients Receiving Palliative Surgery. J Palliat Med 2018. PubMed
  • Reese JB, Sorice K, Lepore SJ, Daly MB, Tulsky JA, Beach MC. Patient-clinician communication about sexual health in breast cancer: A mixed-methods analysis of clinic dialogue. Patient Educ Couns 2018. PubMed
  • Udelsman B, Chien I, Ouchi K, Brizzi K, Tulsky JA, Lindvall C. Needle in a Haystack: Natural Language Processing to Identify Serious Illness. J Palliat Med 2018. PubMed
  • Leiter RE, Yusufov M, Hasdianda MA, Fellion LA, Reust AC, Block SD, Tulsky JA, Ouchi K. Fidelity and feasibility of a brief emergency department intervention to empower adults with serious illness to initiate advance care planning conversations. J Pain Symptom Manage 2018. PubMed
  • Wendlandt B, Ceppe A, Choudhury S, Nelson JE, Cox CE, Hanson LC, Danis M, Tulsky JA, Carson SS. Risk Factors for Post-Traumatic Stress Disorder Symptoms in Surrogate Decision-Makers of Patients with Chronic Critical Illness. Ann Am Thorac Soc 2018. PubMed
  • Bodner ME, Lyna P, Østbye T, Bravender T, Alexander SC, Tulsky JA, Lin PH, Pollak KI. Accuracy and congruence of physician and adolescent patient weight-related discussions: Teen CHAT (Communicating health: Analyzing talk). Patient Educ Couns 2018. PubMed
  • Braun IM, Wright A, Peteet J, Meyer FL, Yuppa DP, Bolcic-Jankovic D, LeBlanc J, Chang Y, Yu L, Nayak MM, Tulsky JA, Suzuki J, Nabati L, Campbell EG. Medical Oncologists' Beliefs, Practices, and Knowledge Regarding Marijuana Used Therapeutically: A Nationally Representative Survey Study. J Clin Oncol 2018; 36:1957-1962. PubMed
  • Poort H, Souza PM, Malinowski PK, MacDougall KM, Barysauskas CM, Lau Greenberg T, Tulsky JA, Fasciano KM. Taking a "Snapshot": Evaluation of a Conversation Aid for Identifying Psychosocial Needs in Young Adults with Cancer. J Adolesc Young Adult Oncol 2018. PubMed
  • Sanders JJ, Curtis JR, Tulsky JA. Achieving Goal-Concordant Care: A Conceptual Model and Approach to Measuring Serious Illness Communication and Its Impact. J Palliat Med 2018; 21:S17-S27. PubMed
  • Forsyth AW, Barzilay R, Hughes KS, Lui D, Lorenz KA, Enzinger A, Tulsky JA, Lindvall C. Machine Learning Methods to Extract Documentation of Breast Cancer Symptoms From Electronic Health Records. J Pain Symptom Manage 2018. PubMed
  • Li L, Nelson JE, Hanson LC, Cox CE, Carson SS, Chai EJ, Keller KL, Tulsky JA, Danis M. How Surrogate Decision-Makers for Patients With Chronic Critical Illness Perceive and Carry Out Their Role. Crit Care Med 2018. PubMed
  • LeBlanc TW, Bloom N, Wolf SP, Lowman SG, Pollak KI, Steinhauser KE, Ariely D, Tulsky JA. Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists. Support Care Cancer 2017. PubMed
  • Lilley EJ, Lindvall C, Lillemoe KD, Tulsky JA, Wiener DC, Cooper Z. Measuring Processes of Care in Palliative Surgery: A Novel Approach Using Natural Language Processing. Ann Surg 2017. PubMed
  • Malhotra C, Kanesvaran R, Krishna L, Xiang L, Kumarakulasinghe NB, Tan SH, Tulsky JA, Pollak KI. Oncologists' responses to patient and caregiver negative emotions and patient perception of quality of communication: results from a multi-ethnic Asian setting. Support Care Cancer 2017. PubMed
  • Balboni MJ, Sullivan A, Smith PT, Zaidi D, Mitchell C, Tulsky JA, Sulmasy D, VanderWeele TJ, Balboni TA. The Views of Clergy Regarding Ethical Controversies in Care at the End of Life. J Pain Symptom Manage 2017. PubMed
  • Steinhauser KE, Alexander S, Olsen MK, Stechuchak KM, Zervakis J, Ammarell N, Byock I, Tulsky JA. Addressing Patient Emotional and Existential Needs, During Serious Illness:Results of the Outlook Randomized Controlled Trial. J Pain Symptom Manage 2017. PubMed
  • Tulsky JA, Beach MC, Butow PN, Hickman SE, Mack JW, Morrison RS, Street RL, Sudore RL, White DB, Pollak KI. A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med 2017. PubMed
  • Odejide OO, Cronin AM, Earle CC, Tulsky JA, Abel GA. Why are patients with blood cancers more likely to die without hospice? Cancer 2017. PubMed
  • Pollak KI, Back AL, Tulsky JA. Disseminating effective clinician communication techniques: Engaging clinicians to want to learn how to engage patients. Patient Educ Couns 2017. PubMed
  • Reese JB, Beach MC, Smith KC, Bantug ET, Casale KE, Porter LS, Bober SL, Tulsky JA, Daly MB, Lepore SJ. Effective patient-provider communication about sexual concerns in breast cancer: a qualitative study. Support Care Cancer 2017. PubMed
  • Nelson JE, Hanson LC, Keller KL, Carson SS, Cox CE, Tulsky JA, White DB, Chai EJ, Weiss SP, Danis M. The Voice of Surrogate Decision Makers: Family Responses to Prognostic Information in Chronic Critical Illness. Am J Respir Crit Care Med 2017. PubMed
  • Bailey DE, Hendrix CC, Steinhauser KE, Stechuchak KM, Porter LS, Hudson J, Olsen MK, Muir A, Lowman S, DiMartini A, Salonen LW, Tulsky JA. Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant. Patient Educ Couns 2017; 100:509-517. PubMed
  • Balboni MJ, Sullivan A, Enzinger AC, Smith PT, Mitchell C, Peteet JR, Tulsky J, VanderWeele T, Balboni TA. United States Clergy Religious Values and Relationships to End-of-Life Discussions and Care. J Pain Symptom Manage 2017. PubMed
  • Reese JB, Sorice K, Beach MC, Porter LS, Tulsky JA, Daly MB, Lepore SJ. Patient-provider communication about sexual concerns in cancer: a systematic review. J Cancer Surviv 2016. PubMed
  • Ouchi K, Block SD, Schonberg MA, Jamieson ES, Aaronson EL, Pallin DJ, Tulsky JA, Schuur JD. Feasibility Testing of an Emergency Department Screening Tool to Identify Older Adults Appropriate for Palliative Care Consultation. J Palliat Med 2016. PubMed
  • Odejide OO, Cronin AM, Condron NB, Fletcher SA, Earle CC, Tulsky JA, Abel GA. Barriers to Quality End-of-Life Care for Patients With Blood Cancers. J Clin Oncol 2016; 34:3126-32. PubMed
  • Carson SS, Cox CE, Wallenstein S, Hanson LC, Danis M, Tulsky JA, Chai E, Nelson JE. Effect of Palliative Care-Led Meetings for Families of Patients With Chronic Critical Illness: A Randomized Clinical Trial. JAMA 2016; 316:51-62. PubMed
  • Johnson KS, Payne R, Kuchibhatla MN, Tulsky JA. Are Hospice Admission Practices Associated with Hospice Enrollment for Older African Americans and Whites? J Pain Symptom Manage 2015. PubMed
  • Bodner ME, Bilheimer A, Gao X, Lyna P, Alexander SC, Dolor RJ, Østbye T, Bravender T, Tulsky JA, Graves S, Irons A, Pollak KI. Studying physician-adolescent patient communication in community-based practices: recruitment challenges and solutions. Int J Adolesc Med Health 2015. PubMed
  • Østbye T, Lyna P, Bodner ME, Alexander SC, Coffman C, Tulsky JA, Dolor R, Pollak K. The Effect of Parental Presence on Weight-Related Discussions Between Physicians and Their Overweight Adolescent Patients. Clin Pediatr (Phila) 2015. PubMed
  • Porter LS, Pollak KI, Farrell D, Cooper M, Arnold RM, Jeffreys AS, Tulsky JA. Development and implementation of an online program to improve how patients communicate emotional concerns to their oncology providers. Support Care Cancer 2015. PubMed
  • Zafar SY, Chino F, Ubel PA, Rushing C, Samsa G, Altomare I, Nicolla J, Schrag D, Tulsky JA, Abernethy AP, Peppercorn JM. The utility of cost discussions between patients with cancer and oncologists. Am J Manag Care 2015; 21:607-15. PubMed
  • Steinhauser KE, Voils CI, Bosworth H, Tulsky JA. What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital. 2015. PubMed
  • Tulsky JA. Decision Aids in Serious Illness: Moving What Works Into Practice. JAMA Intern Med 2015. PubMed
  • Hendrix CC, Bailey DE, Steinhauser KE, Olsen MK, Stechuchak KM, Lowman SG, Schwartz AJ, Riedel RF, Keefe FJ, Porter LS, Tulsky JA. Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being. Support Care Cancer 2015. PubMed
  • Goldstein AO, Viera AJ, Pierson J, Barnhouse KK, Tulsky JA, Richman BD. Physician Beliefs about Physical and Mental Competency of Patients Applying for Concealed Weapon Permits. Behav Sci Law 2015. PubMed
  • Alexander SC, Fortenberry JD, Pollak KI, Østbye T, Bravender T, Tulsky JA, Dolor R, Shields CG. Disclosure of Sexual Intercourse by Teenagers: Agreement Between Telephone Survey Responses and Annual Visit Disclosures. Clin Pediatr (Phila) 2015. PubMed
  • Tulsky JA. Improving quality of care for serious illness: findings and recommendations of the Institute of Medicine report on dying in America. JAMA Intern Med 2015; 175:840-1. PubMed
  • Zafar SY, Ubel PA, Tulsky JA, Pollak KI. Cost-related health literacy: a key component of high-quality cancer care. J Oncol Pract 2015; 11:171-3. PubMed
  • Clay AS, Ross E, Chudgar SM, Grochowski CO, Tulsky JA, Shapiro D. The emotions of graduating medical students about prior patient care experiences. Patient Educ Couns 2015; 98:344-9. PubMed
  • Steinhauser KE, Voils CI, Bosworth HB, Tulsky JA. Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam). J Pain Symptom Manage 2014; 48:1168-81. PubMed
  • Mentz RJ, Tulsky JA, Granger BB, Anstrom KJ, Adams PA, Dodson GC, Fiuzat M, Johnson KS, Patel CB, Steinhauser KE, Taylor DH, O'Connor CM, Rogers JG. The palliative care in heart failure trial: rationale and design. Am Heart J 2014; 168:645-651.e1. PubMed
  • Pollak KI, Coffman CJ, Alexander SC, Østbye T, Lyna P, Tulsky JA, Bilheimer A, Dolor RJ, Lin PH, Bodner ME, Bravender T. Weight's up? Predictors of weight-related communication during primary care visits with overweight adolescents. Patient Educ Couns 2014; 96:327-32. PubMed
  • Sautter JM, Tulsky JA, Johnson KS, Olsen MK, Burton-Chase AM, Lindquist JH, Zimmerman S, Steinhauser KE. Caregiver experience during advanced chronic illness and last year of life. J Am Geriatr Soc 2014; 62:1082-90. PubMed
  • Zafar SY, Tulsky JA, Abernethy AP. It's time to have 'the talk': cost communication and patient-centered care. Oncology (Huntingt) 2014; 28:479-80. PubMed
  • Bravender T, Tulsky JA, Farrell D, Alexander SC, Østbye T, Lyna P, Dolor RJ, Coffman CJ, Bilheimer A, Lin PH, Pollak KI. Teen CHAT: Development and utilization of a web-based intervention to improve physician communication with adolescents about healthy weight. Patient Educ Couns 2013; 93:525-31. PubMed
  • Chhabra KR, Pollak KI, Lee SJ, Back AL, Goldman RE, Tulsky JA. Physician communication styles in initial consultations for hematological cancer. Patient Educ Couns 2013; 93:573-8. PubMed
  • Johnson KS, Kuchibhatla M, Payne R, Tulsky JA. Race and residence: intercounty variation in black-white differences in hospice use. J Pain Symptom Manage 2013; 46:681-90. PubMed
  • Lopez-Acevedo M, Havrilesky LJ, Broadwater G, Kamal AH, Abernethy AP, Berchuck A, Alvarez Secord A, Tulsky JA, Valea F, Lee PS. Timing of end-of-life care discussion with performance on end-of-life quality indicators in ovarian cancer. Gynecol Oncol 2013; 130:156-61. PubMed
  • Chiarchiaro J, Olsen MK, Steinhauser KE, Tulsky JA. Admission to the intensive care unit and well-being in patients with advanced chronic illness. Am. J. Crit. Care 2013; 22:223-31. PubMed
  • Schell JO, Green JA, Tulsky JA, Arnold RM. Communication skills training for dialysis decision-making and end-of-life care in nephrology. Clin J Am Soc Nephrol 2013; 8:675-80. PubMed
  • Barclay JS, Kuchibhatla M, Tulsky JA, Johnson KS. Association of hospice patients' income and care level with place of death. JAMA Intern Med 2013; 173:450-6. PubMed
  • Clayton JM, Butow PN, Waters A, Laidsaar-Powell RC, O'Brien A, Boyle F, Back AL, Arnold RM, Tulsky JA, Tattersall MH. Evaluation of a novel individualised communication-skills training intervention to improve doctors' confidence and skills in end-of-life communication. Palliat Med 2013; 27:236-43. PubMed
  • Morris DA, Johnson KS, Ammarell N, Arnold RM, Tulsky JA, Steinhauser KE. What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness. J Gen Intern Med 2012; 27:1460-6. PubMed
  • Burton AM, Sautter JM, Tulsky JA, Lindquist JH, Hays JC, Olsen MK, Zimmerman SI, Steinhauser KE. Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers. J Pain Symptom Manage 2012; 44:410-20. PubMed
  • Johnson KS, Elbert-Avila K, Kuchibhatla M, Tulsky JA. Characteristics and outcomes of hospice enrollees with dementia discharged alive. J Am Geriatr Soc 2012; 60:1638-44. PubMed
  • Cox CE, Lewis CL, Hanson LC, Hough CL, Kahn JM, White DB, Song MK, Tulsky JA, Carson SS. Development and pilot testing of a decision aid for surrogates of patients with prolonged mechanical ventilation. Crit Care Med 2012; 40:2327-34. PubMed
  • Cox CE, Porter LS, Hough CL, White DB, Kahn JM, Carson SS, Tulsky JA, Keefe FJ. Development and preliminary evaluation of a telephone-based coping skills training intervention for survivors of acute lung injury and their informal caregivers. Intensive Care Med 2012; 38:1289-97. PubMed
  • Alexander SC, Sullivan AM, Back AL, Tulsky JA, Goldman RE, Block SD, Stewart SK, Wilson-Genderson M, Lee SJ. Information giving and receiving in hematological malignancy consultations. 2012. PubMed
  • Tulsky JA, Arnold RM, Alexander SC, Olsen MK, Jeffreys AS, Rodriguez KL, Skinner CS, Farrell D, Abernethy AP, Pollak KI. Enhancing communication between oncologists and patients with a computer-based training program: a randomized trial. Ann Intern Med 2011; 155:593-601. PubMed
  • Steinhauser KE, Arnold RM, Olsen MK, Lindquist J, Hays J, Wood LL, Burton AM, Tulsky JA. Comparing three life-limiting diseases: does diagnosis matter or is sick, sick? J Pain Symptom Manage 2011; 42:331-41. PubMed
  • Rodriguez KL, Bayliss NK, Alexander SC, Jeffreys AS, Olsen MK, Pollak KI, Garrigues SK, Tulsky JA, Arnold RM. Effect of patient and patient-oncologist relationship characteristics on communication about health-related quality of life. 2011; 20:935-42. PubMed
  • Johnson KS, Tulsky JA, Hays JC, Arnold RM, Olsen MK, Lindquist JH, Steinhauser KE. Which domains of spirituality are associated with anxiety and depression in patients with advanced illness? J Gen Intern Med 2011; 26:751-8. PubMed
  • Johnson KS, Kuchibhatla M, Tulsky JA. Racial differences in location before hospice enrollment and association with hospice length of stay. J Am Geriatr Soc 2011; 59:732-7. PubMed
  • Anderson WG, Chase R, Pantilat SZ, Tulsky JA, Auerbach AD. Code status discussions between attending hospitalist physicians and medical patients at hospital admission. J Gen Intern Med 2011; 26:359-66. PubMed
  • Bailey DE, Steinhauser K, Hendrix C, Tulsky JA. Pairing Self-Management with Palliative Care: Intervening in Life-Limiting Illness. 2011; 3:1-3. PubMed
  • Alexander SC, Pollak KI, Morgan PA, Strand J, Abernethy AP, Jeffreys AS, Arnold RM, Olsen M, Rodriguez KL, Garrigues SK, Manusov JR, Tulsky JA. How do non-physician clinicians respond to advanced cancer patients' negative expressions of emotions? Support Care Cancer 2011; 19:155-9. PubMed
  • Pollak KI, Arnold R, Alexander SC, Jeffreys AS, Olsen MK, Abernethy AP, Rodriguez KL, Tulsky JA. Do patient attributes predict oncologist empathic responses and patient perceptions of empathy? Support Care Cancer 2010; 18:1405-11. PubMed
  • Back AL, Arnold RM, Baile WF, Edwards KA, Tulsky JA. When praise is worth considering in a difficult conversation. Lancet 2010; 376:866-7. PubMed
  • Abernethy AP, McDonald CF, Frith PA, Clark K, Herndon JE, Marcello J, Young IH, Bull J, Wilcock A, Booth S, Wheeler JL, Tulsky JA, Crockett AJ, Currow DC. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet 2010; 376:784-93. PubMed
  • Unroe M, Kahn JM, Carson SS, Govert JA, Martinu T, Sathy SJ, Clay AS, Chia J, Gray A, Tulsky JA, Cox CE. One-year trajectories of care and resource utilization for recipients of prolonged mechanical ventilation: a cohort study. Ann Intern Med 2010; 153:167-75. PubMed
  • Rodriguez KL, Bayliss N, Alexander SC, Jeffreys AS, Olsen MK, Pollak KI, Kennifer SL, Tulsky JA, Arnold RM. How oncologists and their patients with advanced cancer communicate about health-related quality of life. 2010; 19:490-9. PubMed
  • Steinhauser KE, Alexander SC, Byock IR, George LK, Tulsky JA. Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life. 2009; 7:393-404. PubMed
  • Cox CE, Martinu T, Sathy SJ, Clay AS, Chia J, Gray AL, Olsen MK, Govert JA, Carson SS, Tulsky JA. Expectations and outcomes of prolonged mechanical ventilation. Crit Care Med 2009; 37:2888-94; quiz 2904. PubMed
  • Skinner CS, Pollak KI, Farrell D, Olsen MK, Jeffreys AS, Tulsky JA. Use of and reactions to a tailored CD-ROM designed to enhance oncologist-patient communication: the SCOPE trial intervention. Patient Educ Couns 2009; 77:90-6. PubMed
  • Kennifer SL, Alexander SC, Pollak KI, Jeffreys AS, Olsen MK, Rodriguez KL, Arnold RM, Tulsky JA. Negative emotions in cancer care: do oncologists' responses depend on severity and type of emotion? Patient Educ Couns 2009; 76:51-6. PubMed
  • Back AL, Arnold RM, Baile WF, Tulsky JA, Barley GE, Pea RD, Fryer-Edwards KA. Faculty development to change the paradigm of communication skills teaching in oncology. J Clin Oncol 2009; 27:1137-41. PubMed
  • Steinhauser KE, Alexander SC, Byock IR, George LK, Olsen MK, Tulsky JA. Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial. J Palliat Med 2008; 11:1234-40. PubMed
  • Robinson TM, Alexander SC, Hays M, Jeffreys AS, Olsen MK, Rodriguez KL, Pollak KI, Abernethy AP, Arnold R, Tulsky JA. Patient-oncologist communication in advanced cancer: predictors of patient perception of prognosis. Support Care Cancer 2008; 16:1049-57. PubMed
  • Anderson WG, Alexander SC, Rodriguez KL, Jeffreys AS, Olsen MK, Pollak KI, Tulsky JA, Arnold RM. "What concerns me is..." Expression of emotion by advanced cancer patients during outpatient visits. Support Care Cancer 2008; 16:803-11. PubMed
  • Allen LA, Yager JE, Funk MJ, Levy WC, Tulsky JA, Bowers MT, Dodson GC, O'Connor CM, Felker GM. Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure. JAMA 2008; 299:2533-42. PubMed
  • Pollak KI, Arnold RM, Jeffreys AS, Alexander SC, Olsen MK, Abernethy AP, Sugg Skinner C, Rodriguez KL, Tulsky JA. Oncologist communication about emotion during visits with patients with advanced cancer. J Clin Oncol 2007; 25:5748-52. PubMed
  • Taylor DH, Ostermann J, Van Houtven CH, Tulsky JA, Steinhauser K. What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Soc Sci Med 2007; 65:1466-78. PubMed
  • Keitz SA, Stechuchak KM, Grambow SC, Koropchak CM, Tulsky JA. Behind closed doors: management of patient expectations in primary care practices. Arch Intern Med 2007; 167:445-52. PubMed
  • Back AL, Arnold RM, Baile WF, Fryer-Edwards KA, Alexander SC, Barley GE, Gooley TA, Tulsky JA. Efficacy of communication skills training for giving bad news and discussing transitions to palliative care. Arch Intern Med 2007; 167:453-60. PubMed
  • Koropchak CM, Pollak KI, Arnold RM, Alexander SC, Skinner CS, Olsen MK, Jeffreys AS, Rodriguez KL, Abernethy AP, Tulsky JA. Studying communication in oncologist-patient encounters: the SCOPE Trial. Palliat Med 2006; 20:813-9. PubMed
  • Steinhauser KE, Clipp EC, Hays JC, Olsen M, Arnold R, Christakis NA, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med 2006; 20:745-54. PubMed
  • Alexander SC, Keitz SA, Sloane R, Tulsky JA. A controlled trial of a short course to improve residents' communication with patients at the end of life. Acad Med 2006; 81:1008-12. PubMed
  • Steinhauser KE, Voils CI, Clipp EC, Bosworth HB, Christakis NA, Tulsky JA. "Are you at peace?": one item to probe spiritual concerns at the end of life. Arch Intern Med 2006; 166:101-5. PubMed
  • Tulsky JA. Beyond advance directives: importance of communication skills at the end of life. JAMA 2005; 294:359-65. PubMed
  • Back AL, Arnold RM, Tulsky JA, Baile WF, Fryer-Edwards KA. On saying goodbye: acknowledging the end of the patient-physician relationship with patients who are near death. Ann Intern Med 2005; 142:682-5. PubMed
  • Johnson KS, Elbert-Avila KI, Tulsky JA. The influence of spiritual beliefs and practices on the treatment preferences of African Americans: a review of the literature. J Am Geriatr Soc 2005; 53:711-9. PubMed
  • Steinhauser KE, Clipp EC, Bosworth HB, McNeilly M, Christakis NA, Voils CI, Tulsky JA. Measuring quality of life at the end of life: validation of the QUAL-E. 2004; 2:3-14. PubMed
  • Back AL, Arnold RM, Tulsky JA, Baile WF, Fryer-Edwards KA. Teaching communication skills to medical oncology fellows. J Clin Oncol 2003; 21:2433-6. PubMed
  • Lo B, Kates LW, Ruston D, Arnold RM, Cohen CB, Puchalski CM, Pantilat SZ, Rabow MW, Schreiber RS, Tulsky JA. Responding to requests regarding prayer and religious ceremonies by patients near the end of life and their families. J Palliat Med 2003; 6:409-15. PubMed
  • Lo B, Ruston D, Kates LW, Arnold RM, Cohen CB, Faber-Langendoen K, Pantilat SZ, Puchalski CM, Quill TR, Rabow MW, Schreiber S, Sulmasy DP, Tulsky JA, . Discussing religious and spiritual issues at the end of life: a practical guide for physicians. JAMA 2002; 287:749-54. PubMed
  • Adams JA, Anderson RA, Docherty SL, Tulsky JA, Steinhauser KE, Bailey DE. Nursing strategies to support family members of ICU patients at high risk of dying. ; 43:406-15. PubMed
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DF/HCC members that share similar concepts* with James A. Tulsky, MD but have yet to coauthor a publication with this researcher.

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