Photo of Joanne Wolfe,  MD, MPH

Joanne Wolfe, MD, MPH

Dana-Farber Cancer Institute

Dana-Farber Cancer Institute
Phone: (617) 632-5286
Fax: (617) 632-2270


joanne_wolfe@dfci.harvard.edu

Joanne Wolfe, MD, MPH

Dana-Farber Cancer Institute

EDUCATIONAL TITLES

  • Professor, Pediatrics, Harvard Medical School
  • Attending Physician, Population Sciences, Dana-Farber Cancer Institute
  • Director, Pediatric Palliative Care, Medicine, Boston Children's Hospital
  • Medical Director, Pediatric Advanced Care Team, Boston Children's Hospital

DF/HCC PROGRAM AFFILIATION

Research Abstract

Within the broader field of health services research in oncology, Dr. Wolfe's original work focused on assessing the patterns of care, determinants and outcomes of the care of children with advanced cancer using survey methodology. She first became interested in investigation the quality of care for children with advanced care during her fellowship training when she embarked on a research project to identify the needs of children with cancer who have life-limiting illness and how to better support their families. This project led to two high profile research publications in the New England Journal of Medicine (342:326-333, 2000) and the Journal of the American Medical Association (284: 2469-2475, 2000).

Dr. Wolfe is currently heading a research program evaluating interventions aimed at improving quality of life for children with advanced cancer. The PediQUEST Study is a multicentered randomized controlled trial (RCT) aimed at assessing the effect of a novel intervention in children with advanced cancer. Specifically, the study is assessing whether increasing physician and family awareness about the child’s experience effects parent-physician communication and child suffering. This is assessed by means of routinely measuring and reporting symptom and quality-of-life data using an innovative data collection strategy: a hand-held computer devise, the Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST). PediQUEST readily administers a user-appropriate survey instrument and has the ability to generate an instant report summarizing how the patient feels. All study participants complete PediQUEST at the clinic, hospital or over the phone at most once a week. Parents are asked to complete a survey about their views about their child’s illness 4 times during the 9-month follow-up period. Physicians are also asked about their perspectives on the child’s illness. Upon enrollment, subjects are randomized to the intervention or control arms of the study. The intervention consists of giving feedback reports generated by PediQUEST to the family and physician. Furthermore, primary oncologists, nurses, and psychosocial clinicians, along with the Pediatric Advanced Care Team (PACT) and the Pain Treatment Service receive emails alerting them to uncontrolled symptoms. The control arms completes the same instruments but feedback is not generated.

This project represents one of the first efforts to assess the feasibility of conducting a randomized controlled supportive care trial in children with advanced cancer. We anticipate that results from this project will lead to important understanding of how to successfully plan an RTC in this patient population. We will also preliminarily evaluate the impact of an innovative approach to improving quality of life and comfort in children with advanced cancer through PediQUEST provider and parent feedback.

Publications from Harvard Catalyst Profiles

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  • Eche IJ, Yusufov M, Isibor DA, Wolfe J. A systematic review and meta-analytic evaluation of psychosocial interventions in parents of children with cancer with an exploratory focus on minority outcomes. Pediatr Blood Cancer 2021; 68:e29328. PubMed
  • Helton G, Beight L, Morris SE, Wolfe J, Snaman JM. One Size Doesn't Fit All in Early Pediatric Oncology Bereavement Support. J Pain Symptom Manage 2021. PubMed
  • Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncol Pract 2021. PubMed
  • Boyden JY, Hill DL, Nye RT, Bona K, Johnston EE, Hinds P, Friebert S, Kang TI, Hays R, Hall M, Wolfe J, Feudtner C, . Pediatric Palliative Care Parents' Distress, Financial Difficulty, and Child Symptoms. J Pain Symptom Manage 2021. PubMed
  • Umaretiya P, Wolfe J, Bona K. Naming the problem: A structural racism framework to examine disparities in palliative care. J Pain Symptom Manage 2021. PubMed
  • Feudtner C, Nye R, Hill DL, Hall M, Hinds P, Johnston EE, Friebert S, Hays R, Kang TI, Wolfe J, . Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data. JAMA Netw Open 2021; 4:e2119730. PubMed
  • Beight LJ, Helton G, Avery M, Dussel V, Wolfe J. Parent and Adolescent Perspectives on the Impact of COVID on the Care of Seriously Ill Children. J Pain Symptom Manage 2021. PubMed
  • Marcus KL, Kao PC, Ma C, Wolfe J, DeCourcey DD. Symptoms and Suffering at End of Life for Children with Complex Chronic Conditions. J Pain Symptom Manage 2021. PubMed
  • Umaretiya PJ, Li A, McGovern A, Ma C, Wolfe J, Bona K. Race, ethnicity, and goal-concordance of end-of-life palliative care in pediatric oncology. Cancer 2021. PubMed
  • Umaretiya PJ, Revette A, Seo A, Flamand Y, Ilcisin L, Zheng DJ, Bhatia S, Wolfe J, Bona K. PediCARE: Development of a poverty-targeted intervention for pediatric cancer. Pediatr Blood Cancer 2021. PubMed
  • Umaretiya PJ, Rubin JP, Snaman JM, Ullrich C, Feraco AM, Dussel V, Wolfe J, Waldman E. Are we undermining the value of palliative care through advanced cancer clinical trial consent language? Cancer 2021; 127:1954-1956. PubMed
  • Kassam A, Gupta A, Rapoport A, Srikanthan A, Sutradhar R, Luo J, Widger K, Wolfe J, Earle C, Gupta S. Impact of Palliative Care Involvement on End-of-Life Care Patterns Among Adolescents and Young Adults With Cancer: A Population-Based Cohort Study. J Clin Oncol 2021. PubMed
  • Basu MR, Partin L, Revette A, Wolfe J, DeCourcey DD. Clinician Identified Barriers and Strategies for Advance Care Planning in Seriously Ill Pediatric Patients. J Pain Symptom Manage 2021. PubMed
  • Ananth P, Revette A, Reed-Weston A, Das P, Wolfe J. Parent and patient perceptions of medical marijuana in the childhood cancer context. Pediatr Blood Cancer 2021; 68:e28830. PubMed
  • Johnston EE, Martinez I, Wolfe J, Asch SM. Quality measures for end-of-life care for children with cancer: A modified Delphi approach. Cancer 2021. PubMed
  • Liaw SN, Sullivan A, Snaman J, Joselow M, Duncan J, Wolfe J. "We're performing improvisational jazz": Interprofessional pediatric palliative care fellowship prepares trainees for team-based collaborative practice. J Pain Symptom Manage 2021. PubMed
  • Ananth P, Mun S, Reffat N, Li R, Sedghi T, Bilodeau M, Snaman J, Gross CP, Ma X, Wolfe J. A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children with Cancer. J Pain Symptom Manage 2021. PubMed
  • Feudtner C, Faerber JA, Rosenberg AR, Kobler K, Baker JN, Bowman BA, Wolfe J, Friebert S. Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey. J Pain Symptom Manage 2021. PubMed
  • Snaman JM, Helton G, Holder RL, Revette A, Baker JN, Wolfe J. Identification of adolescents and young adults' preferences and priorities for future cancer treatment using a novel decision-making tool. Pediatr Blood Cancer 2021; 68:e28755. PubMed
  • Namisango E, Bhakta N, Wolfe J, McNeil MJ, Powell RA, Kibudde S, Luyirika EBK, Mulema V, Feudtner C, Baker JN. Status of Palliative Oncology Care for Children and Young People in Sub-Saharan Africa: A Perspective Paper on Priorities for New Frontiers. JCO Glob Oncol 2021; 7:1395-1405. PubMed
  • Feraco AM, McCarthy SR, Revette AC, Stevens SE, Das PJ, Al-Sayegh H, Ma C, Tulsky JA, Wolfe J. Feasibility and acceptability of the "Day 100 Talk": An interdisciplinary communication intervention during the first six months of childhood cancer treatment. Cancer 2020. PubMed
  • Deming RS, Wolfe J, DeCourcey DD. Weighing Distress and Benefit: Understanding the Research Participation Experiences of Bereaved Parents of Children With Complex Chronic Conditions. J Pain Symptom Manage 2020. PubMed
  • Helton G, Morris SE, Dole OR, Wolfe J, Snaman JM. Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death From Cancer: Room for Improvement. J Pain Symptom Manage 2020. PubMed
  • Requena ML, Orellana L, Cordeiro V, Luna F, Bevilacqua MS, Gomez K, Wolfe J, Dussel V. Spanish Adaptation of the Pediatric Memorial Symptom Assessment Scale for Children, Teens, and Caregivers. J Pain Symptom Manage 2020. PubMed
  • Snaman JM, Helton G, Holder RL, Wittenberg E, Revette A, Tulsky JA, Baker JN, Wolfe J. MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer. Support Care Cancer 2020. PubMed
  • DeCourcey DD, Partin L, Revette A, Bernacki R, Wolfe J. Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness. J Pediatr 2020. PubMed
  • Snaman JM, Helton G, Baker JN, Morris SE, Al-Sayegh H, Ma C, Wolfe J. Engaging Parents of Children Who Died from Cancer in Research on the Early Grief Experience. J Pain Symptom Manage 2020. PubMed
  • Martinez I, Hoppmann A, Perna S, Byrd P, Wolfe J, Aye J, Johnston EE. To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure. J Pain Symptom Manage 2020. PubMed
  • Helton G, Wolfe J, Snaman JM. "Definitely Mixed Feelings:" The effect of COVID-19 on bereavement in parents of children who died from cancer. J Pain Symptom Manage 2020. PubMed
  • Feraco AM, Ananth P, Dussel V, Al-Sayegh H, Ma C, Rosenberg AR, Feudtner C, Wolfe J. Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study. J Pain Symptom Manage 2020. PubMed
  • Snaman J, McCarthy S, Wiener L, Wolfe J. Pediatric Palliative Care in Oncology. J Clin Oncol 2020; 38:954-962. PubMed
  • Wolfe J, Bluebond-Langner M. Paediatric palliative care research come of age. Palliat Med 2020; 34:259-261. PubMed
  • Sisk BA, Feudtner C, Bluebond-Langner M, Sourkes B, Hinds PS, Wolfe J. Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children. Pediatrics 2020. PubMed
  • Lee BK, Boyle PJ, Zaslowe-Dude C, Wolfe J, Marcus KJ. Palliative radiotherapy for pediatric patients: Parental perceptions of indication, intent, and outcomes. Pediatr Blood Cancer 2020; 67:e28003. PubMed
  • Johnston EE, Martinez I, Currie E, Brock KE, Wolfe J. Hospital or Home? Where Should Children Die and How Do We Make that a Reality? J Pain Symptom Manage 2019. PubMed
  • Snaman J, Morris SE, Rosenberg AR, Holder R, Baker J, Wolfe J. Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support. Support Care Cancer 2019. PubMed
  • Brock KE, Snaman JM, Kaye EC, Bower KA, Weaver MS, Baker JN, Wolfe J, Ullrich C. Models of Pediatric Palliative Oncology Outpatient Care-Benefits, Challenges, and Opportunities. J Oncol Pract 2019; 15:476-487. PubMed
  • Feudtner C, Rosenberg AR, Boss RD, Wiener L, Lyon ME, Hinds PS, Bluebond-Langner M, Wolfe J. Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop. J Pain Symptom Manage 2019. PubMed
  • Marcus KL, Santos G, Ciapponi A, Comandé D, Bilodeau M, Wolfe J, Dussel V. Impact of Specialized Pediatric Palliative Care: A Systematic Review. J Pain Symptom Manage 2019. PubMed
  • Friedrichsdorf SJ, Remke S, Hauser J, Foster L, Postier A, Kolste A, Wolfe J. Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics. J Pain Symptom Manage 2019. PubMed
  • Bilodeau M, Dussel V, Wolfe J. Experience of parents receiving results from a quality-of-life study in pediatric advanced cancer: A report from the PediQUEST study. Pediatr Blood Cancer 2019. PubMed
  • Mullin J, Wolfe J, Bluebond-Langner M, Craig F. Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents. Am J Med Genet A 2019. PubMed
  • Snaman JM, Feraco AM, Wolfe J, Baker JN. "What if?": Addressing uncertainty with families. Pediatr Blood Cancer 2019. PubMed
  • DeCourcey DD, Silverman M, Oladunjoye A, Wolfe J. Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions. Crit Care Med 2019; 47:101-108. PubMed
  • Zernikow B, Szybalski K, Hübner-Möhler B, Wager J, Paulussen M, Lassay L, Jorch N, Weber C, Schneider DT, Janßen G, Oommen PT, Kuhlen M, Brune T, Wieland R, Schündeln M, Kremens B, Längler A, Prokop A, Kiener R, Niehues T, Rose M, Baumann-Köhler M, Pöppelmann M, Thorer H, Irnich M, Sinha K, Wolfe J, Schmidt P. Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period. Palliat Med 2018. PubMed
  • Feraco AM, Wolfe J. Integrating palliative and oncology care: paediatric considerations. Lancet Oncol. 2018; 19:e572-e573. PubMed
  • Snaman JM, Blazin L, Holder RL, Wolfe J, Baker JN. Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool. J Adolesc Young Adult Oncol 2018. PubMed
  • Ullrich CK, Dussel V, Orellana L, Kang TI, Rosenberg AR, Feudtner C, Wolfe J. Self-reported fatigue in children with advanced cancer: Results of the PediQUEST study. Cancer 2018. PubMed
  • Jordan M, Keefer PM, Lee YA, Meade K, Snaman JM, Wolfe J, Kamal A, Rosenberg A. Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children. J Palliat Med 2018. PubMed
  • Rosenberg AR, Bradford MC, Barton KS, Etsekson N, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP. Hope and benefit finding: Results from the PRISM randomized controlled trial. Pediatr Blood Cancer 2018. PubMed
  • Rosenberg AR, Bradford MC, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP. Promoting Resilience in Adolescents and Young Adults With Cancer: Results From the PRISM Randomized Controlled Trial. Cancer 2018. PubMed
  • Ilowite MF, Al-Sayegh H, Ma C, Dussel V, Rosenberg AR, Feudtner C, Kang TI, Wolfe J, Bona K. The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study. Cancer 2018. PubMed
  • Zheng DJ, Shyr D, Ma C, Muriel AC, Wolfe J, Bona K. Feasibility of systematic poverty screening in a pediatric oncology referral center. Pediatr Blood Cancer 2018. PubMed
  • Widger K, Wolfe J, Friedrichsdorf S, Pole JD, Brennenstuhl S, Liben S, Greenberg M, Bouffet E, Siden H, Husain A, Whitlock JA, Leyden M, Rapoport A. National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care. J Palliat Med 2018. PubMed
  • Brock KE, Wolfe J, Ullrich C. From the Child's Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care. Children (Basel) 2018. PubMed
  • Widger K, Sutradhar R, Rapoport A, Vadeboncoeur C, Zelcer S, Kassam A, Nelson K, Liu Y, Wolfe J, Earle CC, Pole JD, Gupta S. Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer. J Clin Oncol 2018; 36:801-807. PubMed
  • Snaman JM, Kaye EC, Baker JN, Wolfe J. Pediatric palliative oncology: the state of the science and art of caring for children with cancer. Curr Opin Pediatr 2018; 30:40-48. PubMed
  • Feraco AM, Brand SR, Gagne J, Sullivan A, Block SD, Wolfe J. Development of the "Day 100 Talk": Addressing existing communication gaps during the early cancer treatment period in childhood cancer. Pediatr Blood Cancer 2018. PubMed
  • Ananth P, Ma C, Al-Sayegh H, Kroon L, Klein V, Wharton C, Hallez E, Braun I, Michelson K, Rosenberg AR, London W, Wolfe J. Provider Perspectives on Use of Medical Marijuana in Children With Cancer. Pediatrics 2018. PubMed
  • Rosenberg AR, Orellana L, Wolfe J, Dussel V. The limitations of "how are you feeling?" J Pain Symptom Manage 2017. PubMed
  • Bona K, Wolfe J. Disparities in Pediatric Palliative Care: An Opportunity to Strive for Equity. Pediatrics 2017. PubMed
  • Rosenberg AR, Bradford MC, Bona K, Shaffer ML, Wolfe J, Baker KS, Lau N, Yi-Frazier J. Hope, distress, and later quality of life among Adolescent and Young Adults with cancer. J Psychosoc Oncol 2017. PubMed
  • Bilodeau M, Ma C, Al-Sayegh H, Wolfe J, Bona K. Household material hardship in families of children post-chemotherapy. Pediatr Blood Cancer 2017. PubMed
  • Ananth P, Reed-Weston A, Wolfe J. Medical marijuana in pediatric oncology: A review of the evidence and implications for practice. Pediatr Blood Cancer 2017. PubMed
  • Rosenberg AR, Wolfe J. Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions. Lancet Child Adolesc Health 2017; 1:56-67. PubMed
  • Levine DR, Baker JN, Wolfe J, Lehmann LE, Ullrich C. Strange Bedfellows No More: How Integrated Stem-Cell Transplantation and Palliative Care Programs Can Together Improve End-of-Life Care. J Oncol Pract 2017; 13:569-577. PubMed
  • Ananth P, Monsereenusorn C, Ma C, Al-Sayegh H, Wolfe J, Rodriguez-Galindo C. Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. Pediatr Blood Cancer 2017. PubMed
  • Widger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole JD, Gupta S. The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, Canada. J Palliat Med 2017. PubMed
  • Sisk BA, DuBois J, Kodish E, Wolfe J, Feudtner C. Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree. Pediatrics 2017. PubMed
  • Ananth P, Melvin P, Berry JG, Wolfe J. Trends in Hospital Utilization and Costs among Pediatric Palliative Care Recipients. J Palliat Med 2017. PubMed
  • Kassam A, Sutradhar R, Widger K, Rapoport A, Pole JD, Nelson K, Wolfe J, Earle CC, Gupta S. Predictors of and Trends in High-Intensity End-of-Life Care Among Children With Cancer: A Population-Based Study Using Health Services Data. J Clin Oncol 2017; 35:236-242. PubMed
  • Straehla JP, Barton KS, Yi-Frazier JP, Wharton C, Baker KS, Bona K, Wolfe J, Rosenberg AR. The Benefits and Burdens of Cancer: A Prospective Longitudinal Cohort Study of Adolescents and Young Adults. J Palliat Med 2017. PubMed
  • Feraco AM, Dussel V, Orellana L, Kang TI, Geyer JR, Rosenberg AR, Feudtner C, Wolfe J. Tumor Talk and Child-Well Being: Perceptions of "good" and "bad" news among parents of children with advanced cancer. J Pain Symptom Manage 2017. PubMed
  • Rosenberg AR, Bona K, Ketterl T, Wharton CM, Wolfe J, Baker KS. Intimacy, Substance Use, and Communication Needs During Cancer Therapy: A Report From the "Resilience in Adolescents and Young Adults" Study. J Adolesc Health 2017; 60:93-99. PubMed
  • Rosenberg AR, Wolfe J, Wiener L, Lyon M, Feudtner C. Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review. JAMA Pediatr 2016; 170:1216-1223. PubMed
  • Brand S, Wolfe J, Samsel C. The Impact of Cancer and Its Treatment on the Growth and Development of the Pediatric Patient. Curr Pediatr Rev 2016. PubMed
  • Lobach DF, Johns EB, Halpenny B, Saunders TA, Brzozowski J, Del Fiol G, Berry DL, Braun IM, Finn K, Wolfe J, Abrahm JL, Cooley ME. Increasing Complexity in Rule-Based Clinical Decision Support: The Symptom Assessment and Management Intervention. JMIR Med Inform 2016; 4:e36. PubMed
  • Muriel AC, Wolfe J, Block SD. Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration. J Palliat Med 2016; 19:1032-1038. PubMed
  • Sisk BA, Bluebond-Langner M, Wiener L, Mack J, Wolfe J. Prognostic Disclosures to Children: A Historical Perspective. Pediatrics 2016. PubMed
  • Bona K, Blonquist TM, Neuberg DS, Silverman LB, Wolfe J. Impact of Socioeconomic Status on Timing of Relapse and Overall Survival for Children Treated on Dana-Farber Cancer Institute ALL Consortium Protocols (2000-2010). Pediatr Blood Cancer 2016; 63:1012-8. PubMed
  • Rosenberg AR, Orellana L, Ullrich C, Kang T, Geyer JR, Feudtner C, Dussel V, Wolfe J. Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study. J Pain Symptom Manage 2016. PubMed
  • Kirch R, Reaman G, Feudtner C, Wiener L, Schwartz LA, Sung L, Wolfe J. Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps. CA Cancer J Clin 2016. PubMed
  • Rosenberg AR, Bona K, Wharton CM, Bradford M, Shaffer ML, Wolfe J, Baker KS. Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study. Pediatr Blood Cancer 2016; 63:734-6. PubMed
  • Ullrich CK, Lehmann L, London WB, Guo D, Sridharan M, Koch R, Wolfe J. End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant. Biol Blood Marrow Transplant 2016. PubMed
  • Odejide OO, Cronin AM, Condron N, Earle CC, Wolfe J, Abel GA. Timeliness of End-of-Life Discussions for Blood Cancers: A National Survey of Hematologic Oncologists. JAMA Intern Med 2016; 176:263-5. PubMed
  • Widger K, Friedrichsdorf S, Wolfe J, Liben S, Pole JD, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock JA, Rapoport A. Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer. BMC Palliat Care 2016; 15:12. PubMed
  • Wiener L, Feudtner C, Hinds P, Wolfe J, Mack J. Deeper Conversations Need Not Wait Until the End. J Clin Oncol 2015. PubMed
  • Sanderson A, Hall AM, Wolfe J. Advance Care Discussions: Pediatric Clinician Preparedness and Practices. J Pain Symptom Manage 2015. PubMed
  • Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG. Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions. Pediatrics 2015; 136:938-46. PubMed
  • Bona K, London WB, Guo D, Frank DA, Wolfe J. Trajectory of Material Hardship and Income Poverty in Families of Children Undergoing Chemotherapy: A Prospective Cohort Study. Pediatr Blood Cancer 2015. PubMed
  • Ullrich CK, Rodday AM, Bingen K, Kupst MJ, Patel SK, Syrjala KL, Harris LL, Recklitis CJ, Schwartz L, Davies S, Guinan EC, Chang G, Wolfe J, Parsons SK. Parent Outlook: How Parents View the Road Ahead as They Embark on Hematopoietic Stem Cell Transplantation for Their Child. Biol Blood Marrow Transplant 2015. PubMed
  • Kassam A, Skiadaresis J, Alexander S, Wolfe J. Differences in end-of-life communication for children with advanced cancer who were referred to a palliative care team. Pediatr Blood Cancer 2015; 62:1409-13. PubMed
  • Baker JN, Levine DR, Hinds PS, Weaver MS, Cunningham MJ, Johnson L, Anghelescu D, Mandrell B, Gibson DV, Jones B, Wolfe J, Feudtner C, Friebert S, Carter B, Kane JR. Research Priorities in Pediatric Palliative Care. J Pediatr 2015. PubMed
  • Wolfe J, Orellana L, Ullrich C, Cook EF, Kang TI, Rosenberg A, Geyer R, Feudtner C, Dussel V. Symptoms and Distress in Children With Advanced Cancer: Prospective Patient-Reported Outcomes From the PediQUEST Study. J Clin Oncol 2015; 33:1928-35. PubMed
  • Dussel V, Orellana L, Soto N, Chen K, Ullrich C, Kang TI, Geyer JR, Feudtner C, Wolfe J. Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study. J Pain Symptom Manage 2015. PubMed
  • Friedrichsdorf SJ, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved quality of life at end of life related to home-based palliative care in children with cancer. J Palliat Med 2015; 18:143-50. PubMed
  • Bona K, London WB, Guo D, Abel G, Lehmann L, Wolfe J. Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biol Blood Marrow Transplant 2015; 21:312-8. PubMed
  • Rosenberg AR, Postier A, Osenga K, Kreicbergs U, Neville B, Dussel V, Wolfe J. Long-term psychosocial outcomes among bereaved siblings of children with cancer. J Pain Symptom Manage 2015. PubMed
  • Rosenberg AR, Orellana L, Kang TI, Geyer JR, Feudtner C, Dussel V, Wolfe J. Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol 2014. PubMed
  • Rosenberg AR, Dussel V, Orellana L, Kang T, Geyer JR, Feudtner C, Wolfe J. What's missing in missing data? Omissions in survey responses among parents of children with advanced cancer. J Palliat Med 2014. PubMed
  • Kassam A, Skiadaresis J, Alexander S, Wolfe J. Parent and clinician preferences for location of end-of-life care: home, hospital or freestanding hospice? Pediatr Blood Cancer 2014; 61:859-64. PubMed
  • Wolfe J, Orellana L, Cook EF, Ullrich C, Kang T, Geyer JR, Feudtner C, Weeks JC, Dussel V. Improving the care of children with advanced cancer by using an electronic patient-reported feedback intervention: results from the PediQUEST randomized controlled trial. J Clin Oncol 2014; 32:1119-26. PubMed
  • Rosenberg AR, Wolfe J, Bradford MC, Shaffer ML, Yi-Frazier JP, Curtis JR, Syrjala KL, Baker KS. Resilience and psychosocial outcomes in parents of children with cancer. Pediatr Blood Cancer 2014; 61:552-7. PubMed
  • Bona K, Dussel V, Orellana L, Kang T, Geyer R, Feudtner C, Wolfe J. Economic impact of advanced pediatric cancer on families. J Pain Symptom Manage 2014; 47:594-603. PubMed
  • Feudtner C, Womer J, Augustin R, Remke S, Wolfe J, Friebert S, Weissman D. Pediatric palliative care programs in children's hospitals: a cross-sectional national survey. Pediatrics 2013; 132:1063-70. PubMed
  • Sanderson A, Zurakowski D, Wolfe J. Clinician perspectives regarding the do-not-resuscitate order. JAMA Pediatr 2013; 167:954-8. PubMed
  • Schmidt P, Otto M, Hechler T, Metzing S, Wolfe J, Zernikow B. Did increased availability of pediatric palliative care lead to improved palliative care outcomes in children with cancer? J Palliat Med 2013; 16:1034-9. PubMed
  • Kassam A, Wolfe J. The ambiguities of free-standing pediatric hospices. J Palliat Med 2013; 16:716-7. PubMed
  • Rosenberg AR, Baker KS, Syrjala KL, Back AL, Wolfe J. Promoting resilience among parents and caregivers of children with cancer. J Palliat Med 2013. PubMed
  • Rosenberg AR, Dussel V, Kang T, Geyer JR, Gerhardt CA, Feudtner C, Wolfe J. Psychological distress in parents of children with advanced cancer. JAMA Pediatr 2013. PubMed
  • Kassam A, Skiadaresis J, Habib S, Alexander S, Wolfe J. Moving toward quality palliative cancer care: parent and clinician perspectives on gaps between what matters and what is accessible. J Clin Oncol 2013; 31:910-5. PubMed
  • Waldman E, Wolfe J. Palliative care for children with cancer. Nat Rev Clin Oncol 2013; 10:100-7. PubMed
  • Heath JA, Oh LJ, Clarke NE, Wolfe J. Complementary and alternative medicine use in children with cancer at the end of life. J Palliat Med 2012; 15:1218-21. PubMed
  • von Lützau P, Otto M, Hechler T, Metzing S, Wolfe J, Zernikow B. Children dying from cancer: parents' perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions. J Palliat Care 2012; 28:274-81. PubMed
  • Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol 2011. PubMed
  • Dussel V, Bona K, Heath JA, Hilden JM, Weeks JC, Wolfe J. Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer. J Clin Oncol 2011; 29:1007-13. PubMed
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  • Dellon EP, Shores MD, Nelson KI, Wolfe J, Noah TL, Hanson LC. Caregivers' perspectives on decision making about lung transplantation in cystic fibrosis. Prog Transplant 2009; 19:318-25. PubMed
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