Jennifer Mack, MD, MPH
Dana-Farber Cancer Institute
Dana-Farber Cancer Institute
Phone: (617) 632-6818
Fax: (617) 632-2270
Jennifer Mack, MD, MPH
Dana-Farber Cancer Institute
EDUCATIONAL TITLES
DF/HCC PROGRAM AFFILIATION
DF/HCC ASSOCIATIONS
- Greenzang KA, Kelly CA, Al-Sayegh H, Ma C, Mack JW. Thinking ahead: Parents' worries about late effects of childhood cancer treatment. Pediatr Blood Cancer 2021; 68:e29335. PubMed
- Mack JW, Jaung T, Uno H, Brackett J. Parent and Clinician Perspectives on Challenging Parent-Clinician Relationships in Pediatric Oncology. JAMA Netw Open 2021; 4:e2132138. PubMed
- Sisk BA, Harvey K, Friedrich AB, Antes AL, Yaeger LH, Mack JW, DuBois JM. Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review. Pediatr Blood Cancer 2021. PubMed
- Graetz DE, Rivas SE, Wang H, Vedaraju Y, Fuentes AL, Caceres-Serrano A, Antillon-Klussmann F, Devidas M, Metzger ML, Rodriguez-Galindo C, Mack JW. Communication Priorities and Experiences of Caregivers of Children With Cancer in Guatemala. JCO Glob Oncol 2021; 7:1529-1536. PubMed
- Kaye EC, Woods C, Velrajan S, Lemmon ME, Baker JN, Mack JW. Broaching goals-of-care conversations in advancing pediatric cancer. Pediatr Blood Cancer 2021. PubMed
- Kaye EC, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon ME, Baker JN, Mack JW. Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families. Br J Cancer 2021. PubMed
- Kaye EC, Rockwell S, Woods C, Lemmon ME, Andes K, Baker JN, Mack JW. Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer. JAMA Netw Open 2021; 4:e2120925. PubMed
- Mack JW, Fisher L, Kushi L, Chao CR, Vega B, Rodrigues G, Josephs I, Brock KE, Buchanan S, Casperson M, Cooper RM, Fasciano KM, Kolevska T, Lakin JR, Lefebvre A, Schwartz CM, Shalman DM, Wall CB, Wiener L, Altschuler A. Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer. JAMA Netw Open 2021; 4:e2121888. PubMed
- Lindley LC, Laird JM, Mack JW, Keim-Malpass J, Cozad M, Mooney-Doyle K, Docherty SL. Who is coordinating pediatric concurrent hospice care? J Pain Symptom Manage 2021. PubMed
- Wayant C, Garrett M, Bixler K, Mack J, Goodell J, Vassar M. A Reliability Generalization Meta-Analysis of 17 Patient-Reported Outcome Measures for Positive Psychosocial Constructs in Children, Adolescents, and Young Adults with Cancer. J Adolesc Young Adult Oncol 2021. PubMed
- Sisk BA, Schulz GL, Kaye EC, Baker JN, Mack JW, DuBois JM. Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology. J Palliat Med 2021. PubMed
- Maurer SH, Hinds PS, Reeve BB, Mack JW, McFatrich M, Lin L, Withycombe JS, Jacobs SS, Baker JN, Castellino SM, Freyer DR. Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials. Cancer 2021. PubMed
- Okamura M, Fujimori M, Hata K, Mori M, Mack JW, Prigerson HG, Uchitomi Y. Validity and reliability of the Japanese version of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire. 2021. PubMed
- Hiratsuka Y, Oishi T, Miyashita M, Morita T, Mack JW, Sato Y, Takahashi M, Komine K, Saijo K, Ishioka C, Inoue A. Factors related to specialized palliative care use and aggressive care at end of life in Japanese patients with advanced solid cancers: a cohort study. Support Care Cancer 2021. PubMed
- Lindley LC, Cozad MJ, Svynarenko R, Keim-Malpass J, Mack JW. A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013. J Hosp Palliat Nurs 2021; 23:214-220. PubMed
- Svynarenko R, Mack JW, Lindley LC. Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatr Blood Cancer 2021. PubMed
- Wayant C, Bixler K, Garrett M, Mack JW, Wright D, Vassar M. Evaluation of Patient-Reported Outcome Measures of Positive Psychosocial Constructs in Children and Adolescent/Young Adults with Cancer: A Systematic Review of Measurement Properties. J Adolesc Young Adult Oncol 2021. PubMed
- Sisk BA, Schulz G, Kaye EC, Baker JN, Mack JW, DuBois JM. Conflicting goals and obligations: Tensions affecting communication in pediatric oncology. Patient Educ Couns 2021. PubMed
- Kaye EC, Stall M, Woods C, Velrajan S, Gattas M, Lemmon M, Baker JN, Mack JW. Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer. Pediatrics 2021. PubMed
- Graetz D, Rivas S, Fuentes L, Cáceres-Serrano A, Ferrara G, Antillon-Klussmann F, Metzger M, Rodriguez-Galindo C, Mack JW. The evolution of parents' beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala. BMJ Glob Health 2021. PubMed
- Brand McCarthy S, Tarquini SJ, Metcalf B, Lucy Pickard, Greenzang KA, Mack J. "What Matters to Me": What pediatric stem cell transplant patients want their providers to know. J Psychosoc Oncol 2021. PubMed
- Sisk BA, Keenan MA, Blazin LJ, Kaye E, Baker JN, Mack JW, DuBois JM. "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer. Pediatr Blood Cancer 2021. PubMed
- Sisk BA, Zavadil JA, Blazin LJ, Baker JN, Mack JW, DuBois JM. Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology. JCO Oncol Pract 2021. PubMed
- Keim-Malpass J, Cozad MJ, Svynarenko R, Mack JW, Lindley LC. Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013. J Spec Pediatr Nurs 2021. PubMed
- Currie ER, Johnston EE, Bakitas M, Roeland E, Lindley LC, Gilbertson-White S, Mack J. Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer. J Palliat Care 2021. PubMed
- Sisk BA, Friedrich AB, Kaye EC, Baker JN, Mack JW, DuBois JM. Multilevel barriers to communication in pediatric oncology: Clinicians' perspectives. Cancer 2021. PubMed
- Mack JW, Currie ER, Martello V, Gittzus J, Isack A, Fisher L, Lindley LC, Gilbertson-White S, Roeland E, Bakitas M. Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives. J Natl Compr Canc Netw 2021. PubMed
- Sisk BA, Schulz GL, Blazin LJ, Baker JN, Mack JW, DuBois JM. Parental views on communication between children and clinicians in pediatric oncology: a qualitative study. Support Care Cancer 2021. PubMed
- Hiratsuka Y, Oishi T, Miyashita M, Morita T, Mack JW, Takahashi M, Shirota H, Otsuka K, Ishioka C, Inoue A. Patients' understanding of communication about palliative care and health condition in Japanese patients with unresectable or recurrent cancer: a cross-sectional survey. Ann Palliat Med 2021. PubMed
- Wayant C, Manquen J, Wendelbo H, Kerr N, Crow M, Goodell J, Tricco AC, Mack JW, Hellman C, Vassar M. Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review. J Adolesc Young Adult Oncol 2021. PubMed
- Dombrowski ND, Wolter NE, Robson CD, Kawai K, Irace AL, Vargas SO, Marcus KJ, Mack JW, Collins NB, Rahbar R. Role of Surgery in Rhabdomyosarcoma of the Head and Neck in Children. Laryngoscope 2021; 131:E984-E992. PubMed
- Reeve BB, McFatrich M, Lin L, Lucas NR, Mack JW, Jacobs SS, Withycombe JS, Baker JN, Freyer DR, Hinds PS. Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. Cancer 2020. PubMed
- Graetz DE, Chen Y, Devidas M, Antillon-Klussmann F, Fu L, Quintero K, Fuentes-Alabi SL, Gassant PY, Kaye EC, Baker JN, Rodriguez Galindo C, Mack JW. Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean. Cancer 2020. PubMed
- Hinds PS, Weaver MS, Withycombe JS, Baker JN, Jacobs SS, Mack JW, Maurer SH, McFatrich M, Pinheiro LC, Reeve BB, Wang J. Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? J Pain Symptom Manage 2020. PubMed
- Sisk BA, Friedrich AB, DuBois J, Mack JW. Characteristics of uncertainty in advanced pediatric cancer conversations. Patient Educ Couns 2020. PubMed
- Laird J, Cozad MJ, Keim-Malpass J, Mack JW, Lindley LC. Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children. Health Aff (Millwood) 2020; 39:1770-1775. PubMed
- Graetz DE, Garza M, Rodriguez-Galindo C, Mack JW. Pediatric cancer communication in low- and middle-income countries: A scoping review. Cancer 2020. PubMed
- Mack JW, McFatrich M, Withycombe JS, Maurer SH, Jacobs SS, Lin L, Lucas NR, Baker JN, Mann CM, Sung L, Tomlinson D, Hinds PS, Reeve BB. Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment. JAMA Pediatr 2020. PubMed
- Mack JW, Kang TI. Care experiences that foster trust between parents and physicians of children with cancer. Pediatr Blood Cancer 2020. PubMed
- Liu KX, Collins NB, Greenzang KA, Furutani E, Campbell K, Groves A, Mullen EA, Shusterman S, Spidle J, Marcus KJ, Weil BR, Weldon CB, Frazier AL, Janeway KA, O'Neill AF, Mack JW, DuBois SG, Shulman DS. The use of interval-compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor. Pediatr Blood Cancer 2020. PubMed
- Greenzang KA, Fasciano KM, Block SD, Mack JW. Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer 2020; 126:3281-3288. PubMed
- Sisk BA, Fasciano K, Block SD, Mack JW. Impact of cancer on school, work, and financial independence among adolescents and young adults. Cancer 2020. PubMed
- Graetz D, Kaye EC, Garza M, Ferrara G, Rodriguez M, Soberanis Vásquez DJ, Méndez Aceituno A, Antillon-Klussmann F, Gattuso JS, Mandrell BN, Baker JN, Rodriguez-Galindo C, Mack JW, Agulnik A. Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources. JCO Glob Oncol 2020; 6:1079-1086. PubMed
- Mack JW. Exercise and Well-being in Adult Survivors of Childhood Cancer-Time for Interventions. JAMA Oncol 2020. PubMed
- Greenzang KA, Al-Sayegh H, Ma C, Najafzadeh M, Wittenberg E, Mack JW. Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics 2020. PubMed
- Sisk BA, Dobrozsi S, Mack JW. Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer 2020; 67:e28192. PubMed
- Steineck A, Wiener L, Mack JW, Shah NN, Summers C, Rosenberg AR. Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer 2020; 67:e28249. PubMed
- Mack JW, Uno H, Twist CJ, Bagatell R, Rosenberg AR, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park JR, Cohn SL, Fernandez JH, Diller LR, Shusterman S. Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer. J Pain Symptom Manage 2020. PubMed
- Buiting HM, de Bree R, Brom L, Mack JW, van den Brekel MWM. Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res 2020. PubMed
- Reeve BB, McFatrich M, Mack JW, Pinheiro LC, Jacobs SS, Baker JN, Withycombe JS, Lin L, Mann CM, Villabroza KR, Hinds PS. Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer 2020; 67:e28160. PubMed
- Sisk BA, Fasciano K, Block SD, Mack JW. Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med 2020; 23:310-311. PubMed
- Isack A, Santana VM, Russo C, Klosky JL, Fasciano K, Block SD, Mack JW. Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol 2020. PubMed
- Wiener L, Tager J, Mack J, Battles H, Bedoya SZ, Gerhardt CA. Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer 2020; 67:e27993. PubMed
- Reeve BB, McFatrich M, Mack JW, Maurer SH, Jacobs SS, Freyer DR, Withycombe JS, Baker JN, Castellino SM, Lin L, Lucas NR, Hinds PS. Validity and Reliability of the Pediatric Patient-Reported Outcomes - Common Terminology Criteria for Adverse Events. Journal of the National Cancer Institute 2020. PubMed
- Sisk BA, Friedrich A, Blazin LJ, Baker JN, Mack JW, DuBois J. Communication in Pediatric Oncology: A Qualitative Study. Pediatrics 2020. PubMed
- Klouda T, Steele J, Weichert-Leahey N, Mack J, Subramaniam M. Alveolar rhabdomyosarcoma presenting as a pleural effusion: An atypical presentation of a malignancy. Pediatr. Pulmonol. 2020; 55:3231-3233. PubMed
- Gittzus JA, Fasciano KM, Block SD, Mack JW. Peace of mind among adolescents and young adults with cancer. 2019. PubMed
- Lin B, Gutman T, Hanson CS, Ju A, Manera K, Butow P, Cohn RJ, Dalla-Pozza L, Greenzang KA, Mack J, Wakefield CE, Craig JC, Tong A. Communication during childhood cancer: Systematic review of patient perspectives. Cancer 2019. PubMed
- Roeland EJ, Lindley LC, Gilbertson-White S, Saeidzadeh S, Currie ER, Friedman S, Bakitas M, Mack JW. End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer 2019. PubMed
- Sisk BA, Friedrich AB, DuBois J, Mack JW. Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage 2019. PubMed
- Mack JW, Cronin AM, Uno H, Shusterman S, Twist CJ, Bagatell R, Rosenberg A, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park J, Cohn SL, Levine A, Taddei S, Diller LR. Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer 2019. PubMed
- Sisk BA, Fasciano K, Block SD, Mack JW. Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer 2019. PubMed
- McFatrich M, Brondon J, Lucas NR, Hinds PS, Maurer SH, Mack JW, Freyer DR, Jacobs SS, Baker JN, Mowbray C, Wang M, Castellino SM, Barz Leahy A, Reeve BB. Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer 2019. PubMed
- Sisk BA, Kang TI, Mack JW. Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med 2019. PubMed
- Sisk BA, Mack JW, DuBois J. Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns 2019. PubMed
- Sisk BA, Kang TI, Mack JW. The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer 2019. PubMed
- Graetz D, Fasciano K, Rodriguez-Galindo C, Block SD, Mack JW. Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer 2019. PubMed
- Sisk BA, Weng S, Mack JW. Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer 2019; 66:e27609. PubMed
- Mack JW, Fasciano KM, Block SD. Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics 2019. PubMed
- Dombrowski ND, Wolter NE, Irace AL, Cunningham MJ, Mack JW, Marcus KJ, Vargas SO, Perez-Atayde AR, Robson CD, Rahbar R. Mucoepidermoid carcinoma of the head and neck in children. Int. J. Pediatr. Otorhinolaryngol. 2019; 120:93-99. PubMed
- Brand McCarthy SR, Kang TI, Mack JW. Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer 2019; 27:1319-1324. PubMed
- Habib AR, Cronin AM, Earle CC, Tulsky JA, Mack JW, Abel GA, Odejide OO. How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med 2019. PubMed
- Sisk BA, Kang TI, Goldstein R, DuBois JM, Mack JW. Decisional burden among parents of children with cancer. Cancer 2019. PubMed
- Marron JM, Cronin AM, DuBois SG, Glade-Bender J, Kim A, Crompton BD, Meyer SC, Janeway KA, Mack JW. Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol 2019. PubMed
- Dobrozsi S, Trowbridge A, Mack JW, Rosenberg AR. Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book 2019; 39:573-581. PubMed
- Sisk BA, Schulz GL, Mack JW, Yaeger L, DuBois J. Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS ONE 2019; 14:e0221536. PubMed
- Dombrowski ND, Wolter NE, Irace AL, Robson CD, Perez-Atayde AR, Mack JW, Rahbar R. Squamous cell carcinoma of the head and neck in children. Int. J. Pediatr. Otorhinolaryngol. 2018; 117:131-137. PubMed
- Hseu A, Ayele N, Kawai K, Frazier AL, Mack J, Watters K, Nuss R, Rahbar R. Pediatric vincristine-related vocal fold paralysis. Int. J. Pediatr. Otorhinolaryngol. 2018; 114:166-169. PubMed
- Oishi T, Sato K, Morita T, Mack JW, Shimodaira H, Takahashi M, Takahashi S, Inoue A, Murakawa Y, Kawahara M, Ishioka C, Miyashita M. Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol 2018; 48:913-919. PubMed
- Sisk BA, Mack JW. How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics 2018; 20:E757-765. PubMed
- Mack JW, Fasciano KM, Block SD. Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol 2018; 36:1861-1867. PubMed
- Greenzang KA, Cronin AM, Kang T, Mack JW. Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer 2018. PubMed
- Greenzang KA, Dauti A, Mack JW. Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer 2018. PubMed
- Sisk BA, Kang TI, Mack JW. Sources of parental hope in pediatric oncology. Pediatr Blood Cancer 2018. PubMed
- Sisk BA, Kang TI, Mack JW. How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics 2018. PubMed
- Currie ER, McPeters SL, Mack JW. Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs 2018; 34:294-302. PubMed
- Marron JM, Cronin AM, Kang TI, Mack JW. Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer 2017. PubMed
- Frederick NN, Mack JW. Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer 2017. PubMed
- Ilowite MF, Cronin AM, Kang TI, Mack JW. Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer 2017; 123:3995-4003. PubMed
- Mack JW, Jacobson J, Frank D, Cronin AM, Horvath K, Allen V, Wind J, Schrag D. Evaluation of Patient and Family Outpatient Complaints as a Strategy to Prioritize Efforts to Improve Cancer Care Delivery. Jt Comm J Qual Patient Saf 2017; 43:498-507. PubMed
- Pinheiro LC, McFatrich M, Lucas N, Walker JS, Withycombe JS, Hinds PS, Sung L, Tomlinson D, Freyer DR, Mack JW, Baker JN, Reeve BB. Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res 2017. PubMed
- Sisk BA, Greenzang KA, Kang TI, Mack JW. Longitudinal parental preferences for late effects communication during cancer treatment. Pediatr Blood Cancer 2017. PubMed
- Sisk BA, Mack JW, Ashworth R, DuBois J. Communication in pediatric oncology: State of the field and research agenda. Pediatr Blood Cancer 2017. PubMed
- Duberstein PR, Chen M, Chapman BP, Hoerger M, Saeed F, Guancial E, Mack JW. Fatalism and educational disparities in beliefs about the curability of advanced cancer. Patient Educ Couns 2017. PubMed
- Tulsky JA, Beach MC, Butow PN, Hickman SE, Mack JW, Morrison RS, Street RL, Sudore RL, White DB, Pollak KI. A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med 2017. PubMed
- Sisk BA, Kang TI, Mack JW. Prognostic disclosures over time: Parental preferences and physician practices. Cancer 2017. PubMed
- Mack JW. Pediatric Palliative Care-A Shared Priority. JAMA Oncol 2017. PubMed
- Brand SR, Fasciano K, Mack JW. Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer 2017; 25:769-774. PubMed
- Mack JW, Ilowite M, Taddei S. Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives. Cancer 2017; 123:675-681. PubMed
- Reeve BB, McFatrich M, Pinheiro LC, Freyer DR, Basch EM, Baker JN, Withycombe JS, Sung L, Mack JW, Waldron MK, Mowbray C, Palma D, Hinds PS. Cognitive Interview-based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) in Adolescents with Cancer. J Pain Symptom Manage 2017. PubMed
- Sobota AE, Shah N, Mack JW. Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer 2016. PubMed
- Marron JM, DuBois SG, Glade Bender J, Kim A, Crompton BD, Meyer SC, Janeway KA, Mack JW. Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatr Blood Cancer 2016; 63:1974-82. PubMed
- Reeve BB, McFatrich M, Pinheiro LC, Weaver MS, Sung L, Withycombe JS, Baker JN, Mack JW, Waldron MK, Gibson D, Tomlinson D, Freyer DR, Mowbray C, Jacobs S, Palma D, Martens CE, Gold SH, Jackson KD, Hinds PS. Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer 2016. PubMed
- Mack JW, Cronin AM, Kang TI. Decisional Regret Among Parents of Children With Cancer. J Clin Oncol 2016. PubMed
- Brand SR, Pickard L, Mack JW, Berry LL. What Adult Cancer Care Can Learn From Pediatrics. J Oncol Pract 2016; 12:765-7. PubMed
- Sisk BA, Bluebond-Langner M, Wiener L, Mack J, Wolfe J. Prognostic Disclosures to Children: A Historical Perspective. Pediatrics 2016. PubMed
- Mack JW, Cannavale K, Sattayapiwat O, Cheung B, Chen LH, Cooper RM, Chao CR. Care in the Final Month of Life among Adolescent and Young Adult Cancer Patients in Kaiser Permanente Southern California. J Palliat Med 2016. PubMed
- Walling AM, Keating NL, Kahn KL, Dy S, Mack JW, Malin J, Arora NK, Adams JL, Antonio AL, Tisnado D. Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. J Oncol Pract 2016; 12:e654-69. PubMed
- Greenzang KA, Cronin AM, Mack JW. Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer 2016. PubMed
- Lindley LC, Mack JW, Bruce DJ. Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life. J Pain Symptom Manage 2016; 51:868-74. PubMed
- Sanford E, Wolbrink T, Mack J, Grant Rowe R. Severe Tumor Lysis Syndrome and Acute Pulmonary Edema Requiring Extracorporeal Membrane Oxygenation Following Initiation of Chemotherapy for Metastatic Alveolar Rhabdomyosarcoma. Pediatr Blood Cancer 2016; 63:928-30. PubMed
- Nyborn JA, Olcese M, Nickerson T, Mack JW. "Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med 2016. PubMed
- Mack JW, Chen K, Boscoe FP, Gesten FC, Roohan PJ, Schymura MJ, Schrag D. High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program. Med Care 2015; 53:1018-26. PubMed
- Brooks GA, Cronin AM, Uno H, Schrag D, Keating NL, Mack JW. Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis. J Palliat Med 2015. PubMed
- Wiener L, Feudtner C, Hinds P, Wolfe J, Mack J. Deeper Conversations Need Not Wait Until the End. J Clin Oncol 2015. PubMed
- Mack JW, Cronin A, Fasciano K, Block SD, Keating NL. Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. 2015. PubMed
- Mack JW, Chen LH, Cannavale K, Sattayapiwat O, Cooper RM, Chao CR. End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California. JAMA Oncol 2015. PubMed
- Marron JM, Mack JW. When to say when: How aggressively to care for children with multiply relapsed cancer? Pediatr Blood Cancer 2015. PubMed
- Mack JW, Walling A, Dy S, Antonio AL, Adams J, Keating NL, Tisnado D. Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer. Cancer 2015. PubMed
- Kamihara J, Nyborn JA, Olcese ME, Nickerson T, Mack JW. Parental hope for children with advanced cancer. Pediatrics 2015. PubMed
- Kehl KL, Landrum MB, Arora NK, Ganz PA, van Ryn M, Mack JW, Keating NL. Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care: Shared Decision Making in Cancer Care. JAMA Oncol 2015; 1:50-8. PubMed
- Hobbs GS, Landrum MB, Arora NK, Ganz PA, van Ryn M, Weeks JC, Mack JW, Keating NL. The role of families in decisions regarding cancer treatments. Cancer 2015; 121:1079-87. PubMed
- Walling AM, Weeks JC, Kahn KL, Tisnado D, Keating NL, Dy SM, Arora NK, Mack JW, Pantoja PM, Malin JL. Symptom prevalence in lung and colorectal cancer patients. J Pain Symptom Manage 2015. PubMed
- Dy SM, Walling AM, Mack JW, Malin JL, Pantoja P, Lorenz KA, Tisnado DM. Evaluating the quality of supportive oncology using patient-reported data. J Oncol Pract 2014. PubMed
- Liu PH, Landrum MB, Weeks JC, Huskamp HA, Kahn KL, He Y, Mack JW, Keating NL. Physicians' propensity to discuss prognosis is associated with patients' awareness of prognosis for metastatic cancers. J Palliat Med 2014. PubMed
- Mack JW, Joffe S. Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics 2014; 133 Suppl 1:S24-30. PubMed
- Kaye E, Mack JW. Parent perceptions of the quality of information received about a child's cancer. Pediatr Blood Cancer 2013; 60:1896-901. PubMed
- Benoit MM, Vargas SO, Bhattacharyya N, McGill TA, Robson CD, Ferraro N, Didas AE, Labow BI, Upton J, Taghinia A, Meara JG, Marcus KJ, Mack J, Rodriguez-Galindo C, Rahbar R. The presentation and management of mandibular tumors in the pediatric population. Laryngoscope 2013. PubMed
- Mack JW, Chen K, Boscoe FP, Gesten FC, Roohan PJ, Weeks JC, Schymura MJ, Schrag D. Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol 2013; 31:2569-79. PubMed
- Weeks JC, Mack JW, Schrag D. Talking with patients about dying. N Engl J Med 2013; 368:480-1. PubMed
- Williams DA, Mack J. Enough is indeed enough: ACGME required changes in pediatric training. Pediatr Blood Cancer 2012; 59:1158-9. PubMed
- Mack JW, Cronin A, Keating NL, Taback N, Huskamp HA, Malin JL, Earle CC, Weeks JC. Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. J Clin Oncol 2012; 30:4387-95. PubMed
- Weeks JC, Catalano PJ, Cronin A, Finkelman MD, Mack JW, Keating NL, Schrag D. Patients' expectations about effects of chemotherapy for advanced cancer. N Engl J Med 2012; 367:1616-25. PubMed
- Mack JW, Smith TJ. Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol 2012; 30:2715-7. PubMed
- Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol 2011. PubMed
- Wright AA, Mack JW, Kritek PA, Balboni TA, Massaro AF, Matulonis UA, Block SD, Prigerson HG. Influence of patients' preferences and treatment site on cancer patients' end-of-life care. Cancer 2010; 116:4656-63. PubMed
- Williams DA, Porter ES, Lux SE, Grier HE, Mack JW, Orkin SH. Training program in cancer and blood diseases: Pediatric Hematology/Oncology Fellowship Program, Children's Hospital Boston/Dana-Farber Cancer Institute. Am J Hematol 2010; 85:793-4. PubMed
- Mack JW, Paulk ME, Viswanath K, Prigerson HG. Racial disparities in the outcomes of communication on medical care received near death. Arch Intern Med 2010; 170:1533-40. PubMed
- Mack JW, Weeks JC, Wright AA, Block SD, Prigerson HG. End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol 2010; 28:1203-8. PubMed
- Lannen P, Wolfe J, Mack J, Onelov E, Nyberg U, Kreicbergs U. Absorbing information about a child's incurable cancer. Oncology 2010; 78:259-66. PubMed
- Mack JW,Block SD,Nilsson M,Wright A,Trice E,Friedlander R,Paulk E,Prigerson HG. Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Cancer 2009; 115:3302-11. PubMed
- Mack JW,Wolfe J,Cook EF,Grier HE,Cleary PD,Weeks JC. Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med 2009; 163:519-24. PubMed
- Mack JW,Joffe S,Hilden JM,Watterson J,Moore C,Weeks JC,Wolfe J. Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol 2008; 26:4759-64. PubMed
- Mack JW, Nilsson M, Balboni T, Friedlander RJ, Block SD, Trice E, Prigerson HG. Peace, Equanimity, and Acceptance in the cancer experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer 2008; 112:2509-17. PubMed
- Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Hope and prognostic disclosure. J Clin Oncol 2007; 25:5636-42. PubMed
- Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol 2007; 25:1357-62. PubMed
- Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol 2006; 24:5265-70. PubMed
- Mack JW, Hilden JM, Watterson J, Moore C, Turner B, Grier HE, Weeks JC, Wolfe J. Parent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer. J Clin Oncol 2005; 23:9155-61. PubMed